SCD Resources for Clinicians
The 91¹ú²ú¾«Æ· (ASH) is committed to helping those who treat sickle cell disease (SCD) provide quality care, continue their professional development, and enhance their knowledge and expertise. As part of the Society’s larger effort to conquer SCD worldwide, ASH has developed the following resources for clinicians working to advance outcomes for persons with this disease.
ASH has also published five new evidence-based clinical practice guidelines on the management of acute and chronic complications of SCD.
The 91¹ú²ú¾«Æ· (ASH) is committed to helping those who treat sickle cell disease (SCD) provide quality care, continue their professional development, and enhance their knowledge and expertise. As part of the Society’s larger effort to conquer SCD worldwide, ASH has developed the following resources for clinicians working to advance outcomes for persons with this disease.
ASH has also published five new evidence-based clinical practice guidelines on the management of acute and chronic complications of SCD.
SCD Pocket Guides
Evidence-based pocket guides developed by ASH to help practitioners improve the quality of care provided to patients with sickle cell disease
Consult a Colleague
A service for ASH members that helps facilitate the exchange of information between hematologists and their peers on topics including sickle cell disease
SCD-Related Webinars
Pediatric to Adult Hematologic Care Transition Toolkit
Assessment and summary forms designed to facilitate conversations between patients, parents, and physicians as the patient transitions to adult care
Articles on sickle cell disease published in Blood, the official journal of the 91¹ú²ú¾«Æ·
SCD Patient Resources
An overview of sickle cell disease for patients, including an explanation on the difference between sickle cell trait and sickle cell disease
Resources for SCD Pain Management
Information and resources addressing issues related to pain management from vested stakeholder groups
A series of videos designed to supplement education in classical hematology for fellows
SCD Treatment Demonstration Regional Program
In order to increase provider confidence in treating in individuals with SCD, grantees of the Health Resources and Services Administration’s (HRSA) are using the Project ECHO® (Extension for Community Healthcare Outcomes) model of telementoring and training. The program’s objective is to connect providers with SCD experts so that they can increase their knowledge about best practices in managing individuals with this complex disease.
To learn more about the program, please contact the program lead in your region.
| Region | Contact and Project Lead |
|---|---|
Connecticut, Delaware, District of Columbia, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, Virginia, and West Virginia |
Primary Contact: Bailey House Phone: 443-287-0608 [email protected] Principal Investigator: Rosalyn Stewart, MD Johns Hopkins Medicine |
| Southeast Region Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and Tennessee |
Primary Contact: Shirley H. Miller, MA Phone: 980-442-2535 [email protected] Principal Investigator: Ifeyinwa (Ify) Osunkwo, MD Carolinas HealthCare System, Charlotte, NC |
Illinois, Indiana, Michigan, Minnesota, North Dakota, Ohio, South Dakota, and Wisconsin |
Primary Contact and Principal Investigator: Lisa Shook, MA Cincinnati Children’s Hospital, Cincinnati, OH Phone: 513-636-7541 [email protected] |
Arkansas, Iowa, Kansas, Louisiana, Missouri, Nebraska, Oklahoma, and Texas |
Primary Contact: Regina A. Abel, PhD Phone: 314-286-1649 [email protected] Principal Investigator: Allison A. King, MD Washington University in St. Louis, St. Louis, MO |
Alaska, Arizona, California, Colorado, Hawaii, Idaho, Montana, Nevada, New Mexico, Oregon, Utah, Washington, and Wyoming |
Primary Contact: Shalini Vora Phone: 714-600-479 [email protected]> Principal Investigator: Diane J. Nugent, MD Center for Inherited Blood Disorders, Orange, CA |
Related Content
- ASH Sickle Cell Disease Initiative
ASH's multi-faceted initiative to identify the highest priority actions needed to improve outcomes for individuals with SCD in the U.S. and globally.
- ASH Sickle Cell Disease Initiative Fund
Your donation to the ASH Sickle Cell Disease Initiative Fund will make a real difference in improving care, early diagnosis, and treatment for all those affected by sickle cell disease.
- 2017 ASH Advocacy Efforts Related to Sickle Cell Disease and Sickle Cell Trait
ASH continues to invest in and explore the important actions needed to make a significant difference in sickle cell disease (SCD) access to care, research, and global issues. Learn about the major advocacy-related initiatives undertaken by ASH in 2017.